Our middle son, Jack, has a rare genetic disorder called Facial Infiltrating Lipomatosis. He was born with one side of his skull and facial structure much larger than the other. He had a massive reconstructive surgery at 12 weeks old to try to remove the affected tissue, but it quickly grew back. We spent the first couple years of Jacks life being told there were no treatment options available for us. We traveled to the most prestigious children’s hospital in the world, and even Harvard Medical School told us there were no “good options”.
–Russell and Katrina Morton